Showing posts with label Maggie's Centre West London. Show all posts
Showing posts with label Maggie's Centre West London. Show all posts

Sunday, 3 September 2023

Slow-progress report

It's coming up for six weeks since I had my Big Op, a month since I came home from the hospital. Maybe I expected progress to be quicker than it is, but the plastics in my rear still make walking difficult, and so far I've limited myself to a radius which includes South Kensington to the east, Fulham Palace to the south-west (pictured above by J, self with bag containing my medical cushion, which goes everywhere with me, at the Tudor arch into/out of the fabulous walled garden).



While I hope not to be self-pitying, I can say with some objectivity it had been a bit tough for some weeks since J returned to Dublin after his month-long vigil. I was despairing one day, but found myself immensely bucked up the following morning by lovely plastics person Abigail at Charing Cross Hospital, who told me to my amazement that the surgery on my behind was 'healing beautifully'. And then I saw so many of my favourite people who've helped me - Sushma the stoma nurse (second from left in this pic, which I'm happy to repeat), Lena who did my plastics dressing while I was in hospital (third from right), 

the wonderful Mary and Louise in the Maggie's Centre which I hadn't visited for ages. I wish I'd had my camera with me because the view from where I sat while they spent time talking to me revealed the grape-rich vine and a silk tree in flower (Louise identified it for me). The below picture from one of my first excursions after radiotherapy sessions in February, so stark by comparison, will suffice (more on all that in an earlier blog entry). 

This time some of the regular visitors were there too, fresh from a yoga class, including Morris (Maurice?) who remembered my 'radio voice', and when a venerable ancient bent down to pick up the things I'd left on the floor and I told him he shouldn't be waiting on me, he turned out to be a Thursday volunteer, Tony, I think, has been helping out since the Richard Rogers-designed building first opened in the early 2000s. We talked about musical performances there, and he told me he'd donated to the fund for the restoration of the chapel organ at Christ's Hospital School, where he was a pupil during the Second World War.

Then through Margravine Cemetery, where the Marbled Whites, Gatekeepers and Meadow Browns have ceded to later species such as this Speckled Wood

and the even more common Small White, still beautiful to look at with veins showing on bramble leaves.

to lunch with Cally at our bright new local cafe, PopIn, and on to St Mary's Paddington (quite a shock to hit the mean streets and a hospital which, compared to Charing X is a bit of a mess) to see surgeon Maria. The wonderful Macmillan nurse who made it possible to me to go to Pärnu, Ann, was also there. So good to get the all clear - hopefully a definitive one this time - from two more people who have meant so much to me.

Not so sure my poor 92-year-old mum has been getting the same level of attention in her two hospitalisations following two falls at home (below is her having baked her first cake for some time not long ago, when I visited her in July). 

It was bad timing: her first fall came just before my op, when I was still in Estonia. The second happened in spite of the fact that she had people coming in four times a day at home in addition to her regular carers. I'm sure she was tended to in Epsom Hospital where necessary, but I got no calls from any of the wards she was in until last week, when I finally spoke to a lovely doctor, Flavia, who reassured me that the antibiotics had cleared up a chest infection. Physically she's in OK health, though needs help walking (if she'd not tried to do it by herself at home neither fall would have happened). 

She was sent to a convalescent wing the day after it opened, so that was all a bit at sixes and sevens. Alas, North East Epsom Cottage Hospital, where she had such a good time making friends on the ward two summers ago, closed its restful country quarters and moved to within the main hospital grounds. Her mood when I phoned her varied - sometimes I really wondered if she'd gone to a very dark place within, as it were.

Yet a stressy week or so trying to find her a respite care home for three weeks after discharge seems to have paid off: she's now in Greenacres, The Horseshoe, Banstead, so her friends can come and visit. I spoke to her last night and she was her old self - quipping and laughing. It's been an eye-opener how greedy the private care homes can be. Signature Banstead, the posh place, quoted me £1400 per week including nursing care. That had gone up to £2000 and the stay had to be for at least a month. Beaumont Care in Epsom, recommended by a wonderful district matron, seemed to be in the hands of a pushy person I couldn't quite understand over the phone, who had gone taking a phone assessment with a nurse before I'd asked. Too expensive, anyway - also £2000 - and when she said 'but we can do a deal', it felt like I was dealing with a second-hand care salesperson.

Meanwhile home life has been on a reasonably even keel. No way can I get to Banstead yet, but I've managed four live Proms (walk to West Ken, short tube journey, standing, to South Ken, then to the Albert Hall).

Knackering to various degrees, and not all great, but the first - when J was still here, and took the above pic - had the National Youth Orchestra predictably shining in Hindemith and Strauss's Four Last Songs, with the stunning Masabane Cecilia Rangwanasha. 

They played well in Copland 3 but I just don't 'get' the work. The encores were - also predictably - superlative, especially Errolyn Wallen's arrangement of "Got the Whole World in His Hands", irresistible. Watch the whole thing here. Thursday night's Prom was the best I've been to as a whole - brilliant programming as usual from Vladimir Jurowski, bringing his Berlin Radio Symphony Orchestra to the Proms. Sitting for long periods is out, so J and I listened to Glyndebourne's Poulenc on the radio, and I reviewed it as a broadcast experience. One more to go, just before braving this year's Norfolk Churches Walk. It can't be anything like the big loop of last year, so from our base at Kate and Fairless's lovely house, we're going to assail 40 plus churches in Norwich. I'll do as many as I can. The alternative was driving between far-flung remote churches, and I don't think I could manage sitting and getting in and out. Thinking I might depart from fundraising for the Norfolk Churches Trust this year - J can do that - and donating to Maggie's.

Visits and meetings have kept me going. Another film night here on Tuesday, the choice made as before from my stock of classic movie DVDs - this time Adam's Rib with Katherine Hepburn and Spencer Tracy as married lawyers Pinkie and Pinky - was accompanied by cooking from Cally and Maxine. Edwina is coming to cook again tonight. Her lilies and cucumber from Kent garden did so well.


I like it that I can read so much, between reviews and preparations + execution of my Parsifal Zoom classes. Molly Keane is due a big eulogy soon - so much deeper and richer than I realised; I was also beguiled by Neil Gaiman's vivid retelling of Norse mythology, surely designed to read aloud - it will be useful for Rheingold, but interest was stimulated by the fascinating Norwegian drama Ragnarok, so good at balancing the contemporary mundane with the mythical. Just reached the end of that, and caught up with the very moving final instalments of Derry Girls. What next?

Friday, 24 February 2023

Wings and weather around visits to The Beast

On Tuesday I rang the bell to mark an end to five weeks of radio/chemotherapy which, it's hoped, will have frazzled my bowel tumour. Before that, a colonoscopy, various scans (several involving unexpected manual probes...), and two biopsies under general anaesthetic. Borderline Stage One/Two cancer like this would normally be removed in an op, but as mine is in a difficult place, and it would be a whopper involving plastic surgery and stoma, my wonderfully energetic surgeon Maria suggested I try an alternative route first.

I now wait eight weeks for an MRI scan to see if this has done the trick, and if not...still the op. But at least I know I'll be fine; I'm one of the lucky ones. Below is one of the three identical Beasts, so named by my kind friend Maev, who also took the photo below. Very impressive; it circulates around you like the spaceships dancing to the Blue Danube Waltz in 2001: A Space Odyssey.

I've also been fortunate in having only a ten minute walk to Charing Cross Hospital each weekday morning., with various cafes to stop off at on the way back if I have the time. I asked for early appointments because I wanted to carry on my Monday and Thursday afternoon Zoom classes - on Der Rosenkavalier and Nielsen respectively - which have helped keep me buoyant. I've also kept on reviewing, and witnessed some wonderful chamber and orchestral concerts, plus operatic production of varying degrees of success, mich the most impressive being Richard Jones's wacky new ENO take on Wagner's The Rheingold.

The main payoff of this is Margravine Cemetery, an arboretum with 70 different kind of trees and attendant birds: my big delight here was to witness the return of the overwintering Redwing flock which I missed last year.


I also took it as a good omen that while walking along the home square to the first treatment, I heard, then saw, Goldfinches in the early morning light. They haven't been back to the Niger seed feeder in the back for about a year, but good to know they're still around.

This was Day One, 18 January - a frosty day, one of many, beautifying the graveyard.

On the way back, it was surely serendipity that I bumped into near-neighbours Suchi and Jonathan, whom I hadn't seen since semi-Lockdown walks around the cemetery. We'd been planning to meet up, but now they were insistent that I joined them for supper as many nights of the week as I liked. Didn't want to overdo it, but have enjoyed two evenings of superb southern Indian vegetarian food and excellent company, the second on the eve of my last treatment earlier this week. I'm so grateful to them and all friends far and wide who've been supportive in one way or another. Certainly not been short of invitations to lunch and coffee...

While a hint of spring was already evident that day,

I snapped the first crocus in Margravine territory on 20 January, 

which was when I first saw the Redwings this year.

Three days later, an even more spectacular frost hit. I don't remember one quite like it in London, but probably I'm not usually walking in semi-nature so early in the morning.





Attempts have been made to have plenty of 'art' on the walls of the Radiotherapy Centre, and the theme here was alphabet-themed, but I did have to wonder about the wisdom of this one, next to one of the rooms where I had regular bladder tests (machine below pic) before the meeting with The Beast.

Moving swiftly on, here from 30 January is a clump of snowdrops from 30 January,

carkins


and crocuses waxing more abundant.

For about a week resurfacing of the cemetery paths meant I had skirt the edge, but that was all the better for catching the female Peregrine perched on the top of the hospital from different angles. Using my Leica Zoom to the full meant these aren't ideally sharp, but you get the gist.


Only a couple of weeks earlier, I'd joined the Peregrine watchers in the graveyard, was summoned to look through their telescope - 'be quick, before she flies off' - and then saw her swoop at immense speed over Margraviniana, circling back again (though without prey). Many of the hospital staff didn't know about their nesting guests who bring such glamour to the massive block, so it was good to be able to tell them and show them the pics. 

More common, but still a delight: on the morning of 6 February, there was a twitterfest going on just a couple of block further down the square, a convocation of Great Tits (here's one),

and the ubiquitous Ring-Necked Parakeets still add such colour, especially when they're eating the blossom on the cemetery's first flowering tree.

Snowdrops were now flourishing nearby,

and the magnolia next to the prunus will be flowering soon (though at the end of last week, there were no signs of that in Kew Gardens' magnolia grove.

Here's the first magnolia flower I saw, on Monday morning.

It's part of the beautifully landscaped garden in front of the Maggie's Centre in the grounds of Charing Cross Hospital. Read the story of the inspirational Maggie Keswick Jencks and her husband Charles here. I really regret not having gone there earlier - I hadn't even noticed it, though I knew of its existence from friend Cally, who found and still finds it a godsend during and after her extensive treatment last year - but I investigated on my penultimate day of treatment, and found it a very Utopia.

The building, like all Maggie's Centres, is an architectural treasure, designed by Rogers (as in Richard) Stirk Harbour + Partners, and won two RIBA awards in 2009; again, the website entry is excellent on this. This is the entrance as I first saw it

and one side of the building with the magnolia in front of it.

I look forward to the garden, designed by Dan Pearson, flourishing as the spring arrives - this is one of the first bloomers, a hamamelis or witch hazel - 


 and the three lovely people I met who worked there told me I was welcome to visit for as long as I wanted - one person in remission have been coming for nine years. Anyway, I earmarked it to host the four friends who wanted to come and hear me ring the bell on Tuesday. After my quickest ever treatment - 20 minutes; bladder and bowel fullness or not mean getting to be zapped can take up to an hour or more, and if you go later, there are inevitable delays - I had time to kill, so I wandered round the cemetery again and was very happy to hear the Redwing flock in full voice and see them in full flit and forage


before returning to radiotherapy reception at the time I'd told my pals to come along, 10.15. Wonderful Sharon, seen in the second photo below beckoning in the flowery blouse, summoned as many of the staff who could make it to witness my three rings.



My absolute faves weren't on duty at the time, but all the staff have been kind and courteous, without exception, and I was especially pleased to see my oncologist, Dr Basiak, who looked delighted: she's next to my flowers in the third pic, with friend Deborah behind. Then with a Gail's bag full of buns and cakes to Maggie's, where we sat at the central table and had excellent conversations with other visitors. None of them is in the below picture, because reasonably enough when I asked if I could take it, the request was to keep it to my friends - Carolyn, Tania, Henrik and Deborah. But you can see how lovely it is.

And soon, at last, I get to see my one and only in Dublin after a month apart; he was here for five weeks over Xmas and New Year, but the start of my treatment was put back, so he could only be around for my first four days. But how blessed I am in such good friends to provide support. Onwards!